Baby's pupil looks different - brown - transparent. A retinoblastoma diagnosis.
17 March 2018 - How did we get here? For those who might be wondering about Isla’s diagnosis and how we went from just starting to get...
17 March 2018 - How did we get here? For those who might be wondering about Isla’s diagnosis and how we went from just starting to get...
All went well today. We are home now. Isla did amazing with fasting again. Bloods are all back up in the normal range. Had her EUA and...
On the 2nd of May we had our first trip to Melbourne for Isla’s EUA (Examination under anaesthetic). The Melbourne hiccup disrupted our...
On Wednesday 30 May we had our second trip to Melbourne for the EUA. It was a little easier this time, as we knew where we were going...
At the end of June we headed to Melbourne for Isla’s fifth EUA (examination under anesthetic). Isla’s bloods were high enough this month...
Wednesday 25 July we headed off to Melbourne again for EUA #6 (4th time in Melbourne). It was slightly trickier this time, as Isla’s...
It has all been pretty smooth sailing since Isla finished chemo and feels like there isn’t really a lot to report. Note: In the previous...
This month we were pretty nervous as it has been 2 months since chemo finished and this is when it’s likely that things may start growing...
We tried the later flight again this month and tried a couple of different things to settle Isla on the plane without food or milk. This...
In November we had Isla’s 10th Examination Under Anaesthetic (EUA). We reverted back to the early flight this month so Isla could still...
December was a bit of a messy trip for us. The EUA theatre list is run every 4 weeks on a Wednesday. The intra arterial chemo (IAC)...
We returned to Melbourne 5 weeks after the last trip. We missed the usual EUA date this month as Isla was booked for another round of...
On Wednesday the 6th February we headed back to Melbourne for the normal scheduled EUA. Dr Elder, who normally speaks to us was away...
We returned to Melbourne on the 6th of March for another EUA and a third attempt at 2nd round IAC. The EAU revealed no new tumours and...
On the 3rd of April 2019 we went to Melbourne for Isla’s 15th examination under general anesthetic (EUA). This trip we were not planning...
On Wednesday the 1st of May we returned to Melbourne again for Isla’s 16th EUA. The EUA went well, there were no new tumours and...
We returned to Melbourne on the 29th of May for another EUA. Isla got an ear infection a couple of days before our trip, but this didn’t...
We returned to Melbourne on the 19th of June to attempt intra arterial chemo (IAC) again. The normal retinoblastoma EUA list is run...
We returned to Melbourne on Wednesday the 17th of July for another round of IAC. Again, we arrived in the morning and met with the...
On Wednesday the 14th of August we returned to Melbourne for the third round of intra-arterial chemo. The appointment with the...