

12 March 2018 - Chemo round 1 + tests, tests and more tests.
Sitting in the hospital waiting, so I thought I'd send out a bit of a group update. Isla starts chemo today. She will have 6 courses of 3...

Baby's pupil looks different - brown - transparent. A retinoblastoma diagnosis.
17 March 2018 - How did we get here? For those who might be wondering about Isla’s diagnosis and how we went from just starting to get...

9 April 2018 - EUA #2. Chemo round 2.
All went well today. We are home now. Isla did amazing with fasting again. Bloods are all back up in the normal range. Had her EUA and...

2 May 2018 - EUA #3. Chemo round 3. Interstate travel for treatment.
On the 2nd of May we had our first trip to Melbourne for Isla’s EUA (Examination under anaesthetic). The Melbourne hiccup disrupted our...

30 May 2018 - EUA #4. Chemo round 4.
On Wednesday 30 May we had our second trip to Melbourne for the EUA. It was a little easier this time, as we knew where we were going...

27 June 2018 - EUA #5. Chemo round 5.
At the end of June we headed to Melbourne for Isla’s fifth EUA (examination under anesthetic). Isla’s bloods were high enough this month...

6 July 2018 - MRI #2
Early July Isla had another MRI (under general anaesthetic) to check the progress of her tumours and confirm there was still no spread to...

25 July 2018 - EUA #6. Chemo round 6.
Wednesday 25 July we headed off to Melbourne again for EUA #6 (4th time in Melbourne). It was slightly trickier this time, as Isla’s...

22 August 2018 - EUA #7
It has all been pretty smooth sailing since Isla finished chemo and feels like there isn’t really a lot to report. Note: In the previous...

19 September 2018 - EUA #8
This month we were pretty nervous as it has been 2 months since chemo finished and this is when it’s likely that things may start growing...

17 October 2018 - EUA #9
We tried the later flight again this month and tried a couple of different things to settle Isla on the plane without food or milk. This...

25 October 2018 - MRI #3
Isla had her third MRI (in Adelaide) on Thursday 25 October. She will continue to have MRIs about every 6 months for a couple of years. ...

14 November 2018 - EAU #10
In November we had Isla’s 10th Examination Under Anaesthetic (EUA). We reverted back to the early flight this month so Isla could still...

12 December 2018 - EUA #11 and Intra Arterial Chemo
December was a bit of a messy trip for us. The EUA theatre list is run every 4 weeks on a Wednesday. The intra arterial chemo (IAC)...

Christmas and 1st Birthday!
We had planned to go to Mt Gambier to spend Christmas and Isla’s 1st Birthday with family. However, since we didn’t really know whether...

17 January 2019 - EUA #12 and Intra Arterial Chemo
We returned to Melbourne 5 weeks after the last trip. We missed the usual EUA date this month as Isla was booked for another round of...

6 February 2019 - EUA #13 and Intra Arterial Chemo
On Wednesday the 6th February we headed back to Melbourne for the normal scheduled EUA. Dr Elder, who normally speaks to us was away...

6 March 2019 - EAU #14 and Intra Arterial Chemo
We returned to Melbourne on the 6th of March for another EUA and a third attempt at 2nd round IAC. The EAU revealed no new tumours and...

3 April 2019 - EUA #15
On the 3rd of April 2019 we went to Melbourne for Isla’s 15th examination under general anesthetic (EUA). This trip we were not planning...



















